Feeling Desperate & Alone When I was first diagnosed with CRPS in 2013, after 12-years of pain without answers, I wished it was a death sentence. Why…
A Death Sentence
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Renee Blare Christian Author 
One response to “A Death Sentence”
I was diagnosed with CRPS II in February of 2018 two years after my knee replacement which caused the nerve damage that caused it. I had to see nine doctors, be accused of lying, seeking and selling drugs for pain, and having a mental disorder before atrophy in my leg was noticed by an orthopedic surgeon and I was referred to a back specialist who then referred me to a neurologist. The neurologist did extensive testing and discovered my lumbar-sacral plexus on the right side had been severed and suspected severe drop foot and resulting CRPSII on the right side. This was confirmed with a nerve block.
I had a Spinal Cord Stimulator inserted with little to no effect. It was revised in 2023 and now I have 25-30% relief depending on the day. That with pain management, my pain level reaches 6-7 on average daily with spikes to 9-10 once to twice weekly.
I also suffer severe migraines every two to three months with cluster headaches every three to four months. I have severe osteoarthritis in my left knee which is untreatable besides an unrecommended knee replacement due to CRPSII complications and right shoulder impingement, bursitis, and fully torn labrum due to two manipulations (frozen shoulder release after two years), also not surgically recommended for repair due to CRPSII.
I am limited in my treatment by nerve medications because I have epilepsy and nerve pain medications and CRPS treatments trip my seizure/migraine threshold which includes tonic clinic and generalized seizures.
I am the “expert” in my disease states which are not limited to the above since no specialists exists in my rural area and the nearest facility specializing in them is over 500 miles away.
I have bad days, worse days and horrible days. And then days that I simply survive. That’s CRPSII. It’s progressive and incurable.
I live one day at a time and I’m thankful that God gives me the strength to handle each day.
Onward.
In Christ I go,
Renee B.
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