Category: Rare Disease
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Trust

We are more than the medication we need to take or the diseases we have that require it. We are American citizens who are trying to live our lives the best we can. We have that right.
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Fear of Healthcare in America

But the injustice of the government’s attacks on RARE DISEASES such as mine and my husband’s extends far beyond two disabled, rare disease, chronic pain patients on SSDI…
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Increasing Comfort while LIVING IN AGONY

I don’t work anymore. I take prescription pain medications for pain but I still hurt . . . I’m treated differently by anybody who sees me. How am I comfortable in this thing I call life?
